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Public Reports: Standards - details
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EU [2005]   eHealth Standardization Focus Group 2005-03-04. Current and future standardization issues in the e-Health domain: Achieving interoperability.

"CEN/ISSS has on the request of the European Commission started a new investigation of standards requirements in the area of "eHealth", in connection with the eEurope 2005 action line and in support of the eHealth Policies of the member states. An open CEN/ISSS Focus Group was created to prepare a report and recommendations on these issues."

Health informatics standards are essential to achieve the goals of eHealth in Europe for:

  • "interoperability between systems and patient information exchange between health organisations;
  • market efficiency by providing increased understanding between all players in that market through a common technical framework and terminology for eHealth application development, procurement and implementation;
  • meeting nonfunctional requirements to ensure safety, security and legal requirements e.g. protecting the privacy of the citizens;
  • establishing a representative set of multinational interoperable, coordinated and open eHealth services based on a common business and service architecture
  • managing eHealth services."

Main recommendation:
  • Establish an Interoperability Platform as the basis for implementing a further set of recommendations:
    • Improve access to records
    • Reduce medication-related errors and e-prescribing
    • Control the safety of health informatics products
    • Produce a standard on metadata for knowledge resources and guidelines ensuring quality of health information on web sites
    • Standard workflow models and clinical pathways
    • Electronic transfer of prescriptions
    • Information exchange to support interworking and the mobile citizen
    • Tools for mapping between case mix groupers for diagnoses and procedures.
    • Define priority indicators of quality of care,
    • Improve availability of standards
    • Move towards an international multilingual reference terminology
    • Moves towards a secure information infrastructure.

 


 bullet  eHealth Standardization Focus Group and links to report  bullet  Executive summary
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USA [2005]   Clinical Data Standards in Health Care: Five Case Studies. Katherine Kim for the California HealthCare Foundation. July 2005

 


 bullet  Complete report  bullet  California HealthCare Foundation.
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Australia  2004   Foundations for the future Priorities for health informatics standardisation in Australia, 2005–2008.

" In July 2004, Health Ministers endorsed the establishment of a new national organisation to undertake work in high priority health IM&ICT areas. As an interim measure until June 2005 the National E Health Transition Authority will commence this high priority national work program. Priorities for health IM&ICT to be advanced by the Authority include the development (in some cases continued development) of: .. consent models for e-health .. patient, provider and product identification standards and indexes .. priority clinical data standards, and a national approach to terminologies and classifications .. technical integration standards to allow information to be used and understood across applications (e.g. messaging, communication protocols and middleware) .. a framework and standards for the secure transfer of clinical information among authorised individuals.

This work has provided critical input to this document and forms the basis for the priority areas for standardisation described in chapter 4 of this plan. Critical factors to achieving progress in the priority areas will include: .. governance, leadership and continued investment in development and implementation of interoperability standards .. increased participation in standardisation by clinicians and consumers 2 National Health Information Standards Advisory Committee (February 2000) Setting the Standards: A National Health Information Standards Plan for Australia. Commonwealth of Australia Foundations for the future 3 .. building on existing work wherever possible .. resources to enhance communication and access to information about standards and the development process. It is also vital that Australia continues to support and facilitate convergence of international interoperability standards to ensure they meet Australia’s requirements. Agreed international standards will be crucial to Australia as both an importer and exporter of health information systems and applications and also if health information is to be able to be transferred on an international basis, particularly in times of critical need. A relevant, modern, effective, efficient and sustainable health system can only be built on sound foundations. Foundations for the future provides a structured framework "

 bullet  Complete report  bullet  www.health.gov.au
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Australia [2001]   Setting the Standards: A National Health Information Standards Plan for Australia. National Health Information Management Advisory Council (NHIMAC), Australia. February 2001.

"The objectives of the National Health Information Standards Plan for Australia are:

  1. To set out the processes and structures necessary to promote health information standards in Australia Ñ namely the decision-making, working and funding arrangements.
  2. To identify those policy themes driving national standards development, using as the basis the three key policy themes underpinning Health Online, namely:
    • empowering consumers and communities for better health;
    • better management of clinical information to support clinical care; and
    • using information to build a more efficient and effective health care system.
  3. To propose a comprehensive plan of action for progressing standards work in these areas (including determining what work needs to be progressed and by whom).
  4. To establish a responsive mechanism through which emerging standards are identified, prioritised and actioned." (P15).

"The scope of [the report] is confined to requirements for:

  • information and data standards; and
  • technical standards.
That is, it is concerned with standards that support the formal collection, transfer and exchange of health information including access, use and disclosure issues. The Plan, however, is not intended to cover those standards that are normally applied to ÔdirectÕ professional actions (ie professional practices, ethics, codes of conduct and/or service charters) unless they have a direct informational aspect (eg privacy and record keeping).

The framework has been adopted from Health Online because the intention is to define the standards requirements for health information in Australia in terms of policies and projects that have been agreed by Australian Health Ministers. Hence, the framework and key policy drivers for standards development are as follows:
  1. The development of a national approach to improving consumer access to health information (and thereby empowering consumers and communities for better health) through:
    • the use of information and communication technologies.
  2. The better management of clinical information to support care through:
    • the development of a national framework for the use of electronic health records for service-delivery purposes to provide a means of improving the efficiency, safety and quality of health care;
    • the expanded development of decision-support services; and
    • the development of strategies to expand the appropriate and cost-effective use of telehealth services.
  3. Using information to build a more efficient and effective health care system by:
    • facilitating the greater take up of e-commerce to produce a more efficient health system. In particular, this involves:
      • advancing the use of electronic supply chains;
      • increasing the level of electronic claiming for Medicare and pharmaceutical subsidies; and
      • implementing electronic billing solutions.
    • developing information practices to improve the availability of health information for research, policy and planning purposes to provide a more efficient and effective health system."


 bullet  Complete report
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USA [2000]   National Committee on Vital and Health Statistics, Uniform Data Standards for Patient Medical Record Information: Report to the Secretary of the US Department of Health and Human Services. US Department of Health and Human Services, July 2000.

" ... Today, the greatest impediment to the adoption of information technology is the lack of complete and comprehensive standards for patient medical record information.

In 1991, the Institute of Medicine (IOM) set forth a basic vision for use of information technologies in The Computer-based Patient Record: An Essential Technology for Health Care. In 1993, the General Accounting Office (GAO) urged the acceleration of message format and healthcare terminology standards development in Automated Medical Records: Leadership Needed to Expedite Standards Development. In 1999, the IOM in To Err Is Human: Building a Safer Health System drew national attention to medication errors that often occur as a result of illegible and incomplete information. In December 1999, President Clinton directed the Quality Interagency Coordination Task Force (QuIC) to evaluate the IOM’s recommendations. In February 2000, QuIC responded with an action plan, Doing What Counts for Patient Safety: Federal Actions to Reduce Medical Errors and Their Impact. In 2000, the IOM released Networking Health: Prescriptions for the Internet, which criticizes the health industry for failing to take better advantage of information technologies such as the Internet. Despite these and other calls to action, the nation still has not adopted the laws, standards, business practices, and technologies necessary to create a health information infrastructure. As a result, health care continues to fall short of its potential to improve quality and productivity and to constrain costs. To achieve further administrative simplification, it is essential that the healthcare delivery system adopt uniform data standards for patient medical record information. ".

" The National Committee on Vital and Health Statistics (NCVHS) has identified several major impediments to improving healthcare quality and cost and achieving administrative simplification, including:

  • limited interoperability between information systems
  • lack of comparability in healthcare data
  • concerns with the quality of healthcare data
  • need to protect the privacy of health information
  • inconsistencies among state laws relative to medical record information
  • need for a national health information infrastructure "

    "The report describes how the lack of complete and comprehensive PMRI [Patient medical record information] standards is a major constraint on the ability of our healthcare delivery system to enhance quality, improve productivity, manage costs and safeguard data. It recommends that the government take a leadership role in addressing these issues by accelerating the development, adoption, and coordination of PMRI standards. Further, it addresses the related issues of protecting the confidentiality of PMRI, reducing barriers to the electronic exchange of PMRI caused by diverse state laws, and coordinating the development of PMRI standards within the broader context of the National Health Information Infrastructure."


  •  bullet  complete report  bullet  National Committee on Vital and Health Statistics, US Department of Health & Human Services
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    acknowledgements
     
    page history
    Entry on OpenClinical: 01 December 2005
    Last main update: 01 December 2005

     

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